Gaps in clinical research in frontotemporal dementia: A call for diversity and disparities–focused research
Journal
Alzheimer's & Dementia
ISSN
1552-5260
1552-5279
Date Issued
2023
Author(s)
Sanne Franzen
Karen Nuytemans
Renelle Bourdage
Paulo Caramelli
Ratnavalli Ellajosyula
Elizabeth Finger
Ignacio Illán‐Gala
Samantha M. Loi
Darby Morhardt
Yolande Pijnenburg
Katya Rascovsky
Monique M. Williams
Jennifer S. Yokoyama
Suvarna Alladi
Yavuz Ayhan
Iris Broce
Sheila Castro‐Suarez
Kristy Coleman
Leonardo Cruz de Souza
Penny A. Dacks
Sterre C. M. de Boer
Jessica de Leon
Shana Dodge
Stephanie Grasso
Veer Gupta
Vivek Gupta
Nupur Ghoshal
Vidyulata Kamath
Fiona Kumfor
Jordi A. Matias‐Guiu
Pauline Narme
T. Rune Nielsen
Daniel Okhuevbie
Stefanie D. Piña‐Escudero
Ramiro Ruiz Garcia
Marta Scarioni
Aida Suarez‐Gonzalez
Boon Lead Tee
Elena Tsoy
Hülya Ulugut
Ganesh M. Babulal
Chiadi U. Onyike
Type
Resource Types::text::journal::journal article
URL Institutional Repository
Abstract
<jats:title>Abstract</jats:title><jats:p>Frontotemporal dementia (FTD) is one of the leading causes of dementia before age 65 and often manifests as abnormal behavior (in behavioral variant FTD) or language impairment (in primary progressive aphasia). FTD's exact clinical presentation varies by culture, language, education, social norms, and other socioeconomic factors; current research and clinical practice, however, is mainly based on studies conducted in North America and Western Europe. Changes in diagnostic criteria and procedures as well as new or adapted cognitive tests are likely needed to take into consideration global diversity. This perspective paper by two professional interest areas of the Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment examines how increasing global diversity impacts the clinical presentation, screening, assessment, and diagnosis of FTD and its treatment and care. It subsequently provides recommendations to address immediate needs to advance global FTD research and clinical practice.</jats:p>
Subjects
cultural diversity
;
diagnosis
;
ethnicity
;
frontotemporal dementia
;
language
;
literacy
;
neuropsychological tests
;
primary progressive aphasia
;
aged
;
alzheimer disease
;
europe
;
frontotemporal dementia
;
humans
;
language
;
neuropsychological tests
;
article
;
behavior assessment
;
caregiver support
;
clinical assessment
;
clinical feature
;
clinical practice
;
clinical research
;
cognition assessment
;
cultural diversity
;
executive function
;
experimental cognitive test
;
frontal variant frontotemporal dementia
;
frontotemporal dementia
;
functional disease
;
health care need
;
human
;
language
;
medical society
;
north america
;
patient care
;
screening test
;
shame
;
social cognition
;
speech and language rehabilitation
;
stigma
;
western europe
;
aged
;
alzheimer disease
;
europe
;
frontotemporal dementia
;
neuropsychological assessment
;
psychology