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Author: search.filters.author.Antonia RobertsHas files: No

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    Informal Caregivers in Pediatric and Adolescent Oncology in Chile: Unmet Supportive Care Needs and the Role of Oncology Health Navigators
    (SAGE Publications, 2026-02)
    Francisca Vezzani
    ;
    Antonia Roberts
    ;
    CABIESES VALDES, BALTICA BEATRIZ  
    ;
    CAMPAÑA, CARLA  
    ;
    Manuel A. Espinoza
    <jats:p>Informal caregivers of children and adolescents with cancer, predominantly women, frequently manage complex treatment and care demands with minimal support. This study explores the unmet supportive care needs of informal caregivers of children and adolescents with cancer, as well as their experiences and relationships with oncology health navigators, who have recently been incorporated into the Chilean public healthcare system. A qualitative multiple-case study was employed, with macro-regions (north, center, and south) defined as cases and caregivers as embedded units, selected to capture regional variability in carers’ experiences. Twenty-three in-depth interviews were conducted with female caregivers. Based on conventional content analysis, four unmet supportive care needs were identified: the need for humanized treatment, clear and timely information, adequate psychosocial support, and sufficient social protection. It was also observed that participants’ limited knowledge of the role of oncology health navigators in healthcare services limits the potential of these navigators to reduce inequities. These findings reveal substantial gaps in caregiver support, emphasizing the importance of enhancing oncology health navigator programs and integrating the role of civil society organizations within the care system. Integrating caregivers’ unmet supportive care needs in the design of pediatric oncology services, with a gender perspective, is essential to ensure a more equitable health system.</jats:p>
      1
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    Global health education programs: Are we embedding contemporary global health needs into the curriculum of master’s programs?
    (Frontiers Media SA, 2026-01-09)
    Samraj Singh Bhullar
    ;
    Antonia Roberts
    ;
    CABIESES VALDES, BALTICA BEATRIZ  
    ;
    Edward Mezones-Holguín
    ;
    Ali Al-kassab-Cordova
    <jats:sec> <jats:title>Introduction</jats:title> <jats:p>Global health education (GHE) is expected to prepare professionals to address complex, interlinked global challenges. However, current GHE structures often reflect persistent power asymmetries between the Global North and South, limiting the development of a truly global and equitable health workforce. This review examines how global health master’s programs are distributed geographically and to what extent their thematic focus and core curricular content reflect current global health priorities, particularly those related to equity and social justice.</jats:p> </jats:sec> <jats:sec> <jats:title>Methods</jats:title> <jats:p>A mapping review of 86 graduate-level GHE programs worldwide was conducted to examine their geographic distribution, thematic focus, and curricular content. Programs were categorized by region and analyzed for thematic emphasis and pedagogical approaches, based on publicly available information on modules and learning activities.</jats:p> </jats:sec> <jats:sec> <jats:title>Results</jats:title> <jats:p>The review found that 84% of GHE programs are offered by institutions in the Global North. Programs in the Global South are fewer but tend to emphasize environmental health, governance, and community engagement, often incorporating experiential learning. Across all regions, key topics such as health systems, global health challenges, sustainability, law, ethics, and human rights are unevenly integrated. This variability risks producing graduates with inconsistent competencies to address global health priorities. The dominance of Global North institutions in GHE reflects broader structural inequities in global health. While emerging North–South and South–South collaborations and field-based learning suggest a shift toward more reciprocal models, many programs lack clearly defined aims and accountability frameworks.</jats:p> </jats:sec> <jats:sec> <jats:title>Discussion</jats:title> <jats:p>To advance GHE, curricula must embed equity, interdisciplinarity, and regional relevance. Explicit learning outcomes should include power analysis and partnership-building, co-designed and co-delivered with institutions and communities from both the Global North and South. Such reforms are essential to cultivate a workforce capable of addressing global health challenges with contextual sensitivity and systemic insight.</jats:p> </jats:sec>
      2
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    Therapeutic trajectories of families with rare diseases in Chile from the perspectives of patients, carers, and healthcare workers: a qualitative study
    (Springer Science and Business Media LLC, 2025-02-25)
    CABIESES VALDES, BALTICA BEATRIZ  
    ;
    OBACH KING, ALEXANDRA ALICE  
    ;
    Antonia Roberts
    ;
    REPETTO LISBOA, MARIA GABRIELA  
    Background Rare diseases are conditions that have a low prevalence in the population and a high disease burden and are often chronic and progressive. International evidence concerning the experience of people and families living with rare diseases is scarce, leading to late and erroneous diagnoses, as well as non-specific treatments. This study explored the therapeutic trajectories of people and families living with rare diseases within Chile’s public and private healthcare systems from the perspective of patients, caregivers, and medical teams, including the initial symptoms, first consultation, testing, diagnosis, treatment, and follow-up. Methods A qualitative exploratory study was conducted through multiple case studies. Sixty participants were interviewed in person and/or virtually: patients (n = 16), caregivers (n = 22), healthcare workers (n = 20), and two patient organisation leaders. The material was analysed using thematic analysis. The project was approved by the Scientific Ethics Committee of Facultad de Medicina Clínica Alemana, Universidad del Desarrollo. Results After similar initial symptoms and first consultation, three main types of trajectories were identified: (i) the path taken by those who reach a diagnosis for a disease that has specific treatment available; (ii) the journey of those who reach a diagnosis for their health condition, but their disease does not have a specific treatment available; and (iii) the trajectory of those who have not reached a diagnosis and receive symptomatic treatments for symptoms. Conclusions The therapeutic trajectories of patients with rare symptoms are similar in terms of initial symptoms and first consultation. However, their paths diverge at the diagnostic stage, with diverse experiences related to these journeys, largely based on having a diagnosis and whether there is a specific treatment. Rare conditions in Chile requires further attention and urgent action that considers those who live with them and their families.
      1
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    Exploring the characteristics of cancer-centred civil society organisations in Chile: A qualitative study
    (Public Library of Science (PLoS), 2025-05-16)
    Antonia Roberts
    ;
    Francisca Vezzani
    ;
    CABIESES VALDES, BALTICA BEATRIZ  
    ;
    OBACH KING, ALEXANDRA ALICE  
    ;
    CAMPAÑA, CARLA  
    In Chile, civil society organisations in health have been historically active in population health and specifically in cancer; they have had an important role in addressing patients’ and families’ necessities. Although they occupy a central role, there is no clarity about who they are, how they are organised, the goals that guide their performance and how they materialize social participation in health. Based on that, this study aimed to explore the characteristics of civil society organisations that work in cancer in Chile and to identify the networks they build with other actors to achieve their goals. Materials and methods Qualitative case study using semi-structured online interviews with organisation representatives, politicians, decision-makers and academics related to cancer in Chile. Content analysis was performed, admitting emerging categories from the participants’ narratives.</jats:p> Results Three main profiles of organisations were identified: (i) Long-established organisations focused on influencing public policy and decision-making in cancer, (ii) Growing organisations focused on informing and supporting families and patients, (iii) Newly established organisations focused on patient well-being, such as sports activities. Relationships between groups and other actors involve perceived benefits like the growth of the organisations and funding for activities. However, perceived barriers and inequities are also identified, mainly lack of financial resources, competition between organisations and insufficient information. Discussion The objectives of civil society organisations in cancer are diverse and reflect multiple ways of practising social participation in health. Tensions generate unequal participation and missed opportunities to promote public health in cancer in Chile. The study highlights the importance of recognising cancer social organisations as essential actors in public health. It is crucial to involve them in formulating and implementing comprehensive responses to maximise the opportunities for progress in this field.
      4
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    El rol de nuevas organizaciones de la sociedad civil en la promoción de salud sexual en Chile
    (2023)
    OBACH KING, ALEXANDRA ALICE  
    ;
    Michelle Sadler
    ;
    Matías Marín
    ;
    Antonia Roberts
    El artículo −que da cuenta de los resultados de dos investigaciones cualitativas ejecutadas entre 2020 y 2022−, tiene como propósito, desde un enfoque de salud global, salud colectiva y vulnerabilidad estructural, reflexionar en torno al rol que juegan nuevos actores de la sociedad civil en la promoción de la salud sexual, de derechos sexuales y en la prevención y detección del VIH en Chile. Estos actores son organizaciones de la sociedad civil conformadas por jóvenes profesionales de la salud que han construido espacios de información, promoción y atención en salud sexual y reproductiva fuera del sistema formal de salud; y organizaciones lideradas por jóvenes LGBTIQA+ en torno a información en sexualidades en general, y a acceso a prevención y detección del VIH en particular. El artículo contribuye en mostrar la importancia que tienen estos nuevos actores en las trayectorias terapéuticas en materia de salud sexual de jóvenes en Chile, y la relevancia aun mayor que han adquirido desde el inicio de la pandemia de Covid-19.
    Scopus© Citations 1  7
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