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Item type:Publication, Barriers and opportunities for participation in health policy decision-making by civil society groups organized for cancer in Chile: a qualitative study(Springer Science and Business Media LLC, 2026-03-18); ; 3 - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Informal Caregivers in Pediatric and Adolescent Oncology in Chile: Unmet Supportive Care Needs and the Role of Oncology Health Navigators(SAGE Publications, 2026-02); ; Manuel A. Espinoza<jats:p>Informal caregivers of children and adolescents with cancer, predominantly women, frequently manage complex treatment and care demands with minimal support. This study explores the unmet supportive care needs of informal caregivers of children and adolescents with cancer, as well as their experiences and relationships with oncology health navigators, who have recently been incorporated into the Chilean public healthcare system. A qualitative multiple-case study was employed, with macro-regions (north, center, and south) defined as cases and caregivers as embedded units, selected to capture regional variability in carers’ experiences. Twenty-three in-depth interviews were conducted with female caregivers. Based on conventional content analysis, four unmet supportive care needs were identified: the need for humanized treatment, clear and timely information, adequate psychosocial support, and sufficient social protection. It was also observed that participants’ limited knowledge of the role of oncology health navigators in healthcare services limits the potential of these navigators to reduce inequities. These findings reveal substantial gaps in caregiver support, emphasizing the importance of enhancing oncology health navigator programs and integrating the role of civil society organizations within the care system. Integrating caregivers’ unmet supportive care needs in the design of pediatric oncology services, with a gender perspective, is essential to ensure a more equitable health system.</jats:p>1 - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Unmet supportive care needs of young women with breast cancer in Chile during follow-up stage after treatment: A qualitative study(Public Library of Science (PLoS), 2025-08-13); ; Scopus© Citations 3 1 - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Barriers to accessing formal cancer care from the perspective of informal caregivers: a qualitative study(Springer Science and Business Media LLC, 2025-04-21); ; ; 5 - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Exploring the characteristics of cancer-centred civil society organisations in Chile: A qualitative study(Public Library of Science (PLoS), 2025-05-16); ; In Chile, civil society organisations in health have been historically active in population health and specifically in cancer; they have had an important role in addressing patients’ and families’ necessities. Although they occupy a central role, there is no clarity about who they are, how they are organised, the goals that guide their performance and how they materialize social participation in health. Based on that, this study aimed to explore the characteristics of civil society organisations that work in cancer in Chile and to identify the networks they build with other actors to achieve their goals. Materials and methods Qualitative case study using semi-structured online interviews with organisation representatives, politicians, decision-makers and academics related to cancer in Chile. Content analysis was performed, admitting emerging categories from the participants’ narratives.</jats:p> Results Three main profiles of organisations were identified: (i) Long-established organisations focused on influencing public policy and decision-making in cancer, (ii) Growing organisations focused on informing and supporting families and patients, (iii) Newly established organisations focused on patient well-being, such as sports activities. Relationships between groups and other actors involve perceived benefits like the growth of the organisations and funding for activities. However, perceived barriers and inequities are also identified, mainly lack of financial resources, competition between organisations and insufficient information. Discussion The objectives of civil society organisations in cancer are diverse and reflect multiple ways of practising social participation in health. Tensions generate unequal participation and missed opportunities to promote public health in cancer in Chile. The study highlights the importance of recognising cancer social organisations as essential actors in public health. It is crucial to involve them in formulating and implementing comprehensive responses to maximise the opportunities for progress in this field.4 - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Perceived barriers to reaching equity in effective access to diagnosis and treatment for women with breast cancer in Chile(Springer Science and Business Media LLC, 2025-02-05); ; ; Francisca VezzaniScopus© Citations 1 2 - Some of the metrics are blocked by yourconsent settings
Item type:Publication, “Healthcare should be the same for everyone”: perceived inequities in therapeutic trajectories of adult patients with lung cancer in Chile, a qualitative study(2023); ; ; Francisca Vezzani<jats:sec><jats:title>Background</jats:title><jats:p>Globally, it has been reported that different social determinants of health affect health outcomes in lung cancer (LC). Research on the therapeutic trajectories of patients (TTP) is a novel field for identifying barriers and facilitators in health. The objective of this study was to reveal perceived differences in TTP with LC in Chile according to selected social determinants of health (SDH) and the experiences of patients, health professionals, and civil society leaders.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>This is a qualitative paradigm, one case-study design. Online semi-structured interviews were conducted with patients with LC, health professionals, and civil society leaders. The strategies for the recruitment process included social networks, civil society organizations, health professionals, and the snowball technique. A thematic analysis was carried out.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Selected SDH impact LC's TTP in Chile, particularly concerning health system access, health services, information, and patient navigation experiences. The analysis of the experiences of the participants allowed us to identify barriers related to the selected SDH in three stages of the TTP: initiation, examinations, and diagnosis and treatment. Individuals with limited education, those residing outside the capital, women, and those in the public health system encountered more barriers throughout their TTP.</jats:p></jats:sec><jats:sec><jats:title>Discussion</jats:title><jats:p>Study findings suggest that being a woman with low education, from the public health system, and not from the capital might represent one of the most powerful intersections for experiencing barriers to effective healthcare in LC in Chile. It is necessary to monitor the TTP from an SDH perspective to guarantee the rights of access, opportunity, quality, and financial protection.</jats:p></jats:sec>Scopus© Citations 4 1 - Some of the metrics are blocked by yourconsent settings
Item type:Publication, Perceived barriers and facilitators for adhering to COVID-19 preventive measures in Chile: a qualitative study in three large cities(2023); ; Scopus© Citations 2 1 - Some of the metrics are blocked by yourconsent settings
Item type:Publication, 2Scopus© Citations 4